Chapter Contact Information

HDSA - Michigan Chapter
1221 Bowers St.
PO Box 1091
Birmingham, MI 48012-9998

Chapter Office Number: 989-832-4170
Help Line Number: 800-909-0073
FAX Number: 517-827-4950
E-Mail: michigan@hdsavolunteer.org



2016 Board of Directors

President: Donna Spencer
Donna is the Area Business Manager, for Genzyme in the MS Business Unit. HD comes from her mothers side of the family, with her generation being the first to become symptomatic.  Four of seven siblings have tested, 3 are positive (the oldest three which includes my mom), 1 has passed from the disease, and one is currently in a nursing home.  At last count, over 50 family members across 4 generations are at risk.  Donna has been with MI-HDSA for 2 plus years, 1st as the treasurer and now she humbly serves as President.
Email: donna_spencer@me.com

Vice President & Education Chair: Kelly Kennelly
Email: kelly.kennelly@stjoeshealth.org

Treasurer: David Stickles
Dave graduated from Ferris State University with a degree in Industrial Chemistry Technology, and worked at Dow Corning Corporation for 32 years. His best friend Roger was diagnosed with HD in 1996, and Dave became his primary caregiver until he passed away from complications from HD in 2002.  Roger lost a daughter to JHD at the age of 14, along with many other family members, and he has family who are currently at risk. He has 3 grandchildren who thanks to IVF are not at risk. Dave has served on the board of HDSA Michigan Chapter since 2000, and was President for 10 years. He published the HDSA Michigan Chapter newsletter from 2004-2016, and maintained the  chapter website from 2004 -2015. He currently leads the Tri-Cities Support Group in Saginaw MI and lives in Midland MI.
Email: dstick44@chartermi.net

Secretary: Katrina Walker
Katrina has been an Activity Assistant for 8 years, working with the senior population, planning events and activities. The same year her mother was diagnosed with HD, she had a personal goal to run a 5K. After a quick search to find a way to meet her goal and support her mother, she discovered HDSA and the Team Hope walks. With the support of her husband, family and friends, she organized the Team Hope Walk for the Downriver area, now in its 5th year. Katrina attended her first HDSA National Convention in 2015, and became interested in getting more involved with HDSA. In 2016, she joined the Michigan Chapter Board, and continues to be an advocate for HD. In her free time, she enjoys reading, creative and artistic activities, outdoor activities and spending time with her husband, family and friends.
Email: katswed@gmail.com

Fundraising Chair: Krissi Putansu
Krissi has led the Royal Oak Support Group since 2001; her mother has Huntington's Disease. Krissi joined the HDSA, Michigan Chapter board in 2010 and held both Vice President and President roles. Beginning in 2016, Krissi is currently the Fundraising Chair and initiates many long-term annual fundraisers including Spotlight on a Cure, Team Hope Walks, Bowl for HD, and more. She is passionate about educating medical students about being a better physician to Huntington's Disease patients and speaks to them nationally at various universities. She also assists in the care of her mom and enjoys playtime with her young son. Krissi enjoys acting in theatre and by day is a Human Resources Leader.
Email: krissilynn18@hotmail.com

Family Services Chair: Kelly Norris
Email: kellyenorris@sbcglobal.net

Advocacy Chair: Chelsea Rink
Chelsea works in nursing home admissions and is striving towards becoming a nursing home administrator, completing her Masters in Healthcare Administration at Grand Valley State University. Long term care has been her passion ever since she realized the struggles in finding viable long term care options for people with HD, like her grandmother. Chelsea has been involved with HDSA since 2012 in a variety of roles on the Michigan Chapter board, and as the HDSA Great Lakes Region Development Coordinator from 2013-2014. She also organizes the West Michigan Team Hope Walk & 5K, which is now in its fifth year. Chelsea lives in Holland, MI and enjoys spending time with family and friends at the lake, going for walks with her dog, and playing tennis.
Email: crink914@gmail.com

Communications Chair: Don Peasley
Don joined the Michigan Board in May of 2016. His wife received a positive diagnosis in 2013, but in advance of that, he began attending the Royal Oak support group as a way to prepare himself and his family for the journey ahead. Don is a big believer in providing resources that benefit the entire family, patients and caregivers, and plans to use his 25 years in marketing and advertising to raise awareness and connect people in the State of Michigan affect by HD.
As a fan of yoga, Don is also connecting with members in the research community who are exploring the benefits of physical activity in managing the symptoms of HD. 
Email: donaldpeasley5@gmail.com

Nominating Chair: Peggy Reddaway
Email: michreddog@aol.com

NYA Representative: Miranda Spencer
Miranda has been a member of HDSA for 2 years and a member of the NYA (National Youth Alliance) for the past year. She is currently a nursing student at Michigan State University and hopes to go to graduate school to become a Nurse Practitioner and work in an outpatient center for chronic neurological disorders. Miranda recently joined the board of the Michigan Chapter in January 2016 as the NYA chair in hopes of getting more youth involved with HDSA. Her grandma and her grandma's sister have HD and has many family members that are at risk for HD. She also has a brother and a sister that are also active in the HD community and NYA. 
Email: MichiganNYA@yahoo.com


Chapter Social Worker

Stephanie Forbes
Email: sforbes@HDSA.org
Phone: (989)948-2089


HDSA Regional Development Director

Deborah Boyd
HDSA c/o Deborah Boyd
P.O. Box 408                                                      
Richland, MI 49083

Email: dboyd@hdsa.org
Phone: (269) 629-5452
Fax: (269) 629-4205



The Huntington's Disease Society of America, Michigan Chapter and its Support Groups are a fellowship of relatives, friends and persons with HD, who share their experiences, strengths and hopes in order to solve common problems. We believe Huntington's Disease is a family illness that changed attitudes in addition to support can aid in living each day to its fullest!

This chapter and its Support Groups are not allied with any political entity or institution. We do not discriminate against anyone regardless of religion, race, color, national origin, age, sex, height, weight, marital status, handicap, sexual orientation, or any other category protected by law.

We are self supporting through voluntary contributions, fund raisers and financial grants.

HDSA and our Michigan Chapter are dedicated to finding a cure and treatment for HD through research, patient and family services, education, and community services.
Please Click Here to check our national 990's and financial Information
and our Annual Reports.

 
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